The Health Symposium

Event name: WDSC 2018 Pre-Congress Health Symposium

Organised by: Down Syndrome International

Advised by: Down Syndrome Medical Interest Group – UK and Ireland, Down Syndrome Medical Interest Group – USA

Supported by: Down’s Syndrome Scotland, Down’s Syndrome Association, Down Syndrome Ireland

Attendees: Healthcare providers and researchers with a special interest in the clinical care of people with Down’s syndrome.

Location: Scottish Event Campus, 24th July 2017 (time to be confirmed)

We are delighted to announce that top healthcare providers working with children and adults with Down’s syndrome from around the world will meet for a 1 day symposium prior to the start of WDSC 2018. This symposium is a rare opportunity for those who specialise in clinical practice and research on Down’s syndrome to come together and consider current, important developments in prevalent medical conditions.


We can now announce the key topics for discussion, together with leading experts who will present:


Topic 1
Emerging issues relating to coeliac disease in children with Down’s syndrome

Dr Peter Gillett, Consultant Paediatric Gastroenterologist, Royal Hospital for Sick Children, Edinburgh, United Kingdom Chair of BSPGHAN Coeliac Group


Topic 2
Adult health screening – Should we be screening for conditions less common in Down syndrome which are recommended for the general adult population?

Dr Brian Chicoine, Medical Director, Adult Down Syndrome Center, Advocate Lutheran General Hospital, Park Ridge, IL, United States

Dr Peter Bulova, Director, University of Pittsburgh Adult Down Syndrome Center, Pittsburgh, PA, United States


Topic 3
Sleep disordered breathing in children with Down’s syndrome

Dr Catherine M. Hill, Associate Professor of Child Health, University of Southampton Chair of the Faculty of Medicine Ethics Committee and Honorary Consultant in Paediatric Sleep Medicine


Topic 4
Mental health in adults with Down syndrome – prevalence, presentation, grief/bereavement, impact on caretakers/family, comorbid medical concerns, treatment approaches

Dr Anna Esbensen, Associate Professor, Research Director, Jane and Richard Thomas Center for Down Syndrome, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, United States

Dr George Capone, Director Down Syndrome Clinic and Research Center, Kennedy Krieger Institute, Baltimore, MD, United States


The day will be split into 4 parts around these topics, beginning with the presentations, followed by active participation from the full audience.

The symposium aims to bring together leading professionals and thinkers to take the conversation forward in areas where it is merited, all with the aim of improving healthcare outcomes.

If you are a healthcare provider who works with people with Down’s syndrome this is a “must attend” event and your input on the day will be very much appreciated.

You can register to attend this symposium at the same time as registering your attendance to WDSC 2018. There will be a small extra charge for attending this event, payable on delegate registration.

Once registered you will be included on a mailing list for regular updates.

If you would like any new information sent to your inbox as it becomes available, please sign up to the mailing list at the DSi website.

The Gathering

This will be a day for delegates with Down’s syndrome to come together. They’ll share conversations and ideas about their lives, what it’s like now, and how they’d like it to be in the future.  They’ll talk about their unique gifts and what they each bring to their communities.

Please note this event is only open to Participants with Down’s syndrome aged 18+. A parent/guardian/carer may attend to provide assistance if required.








We are delighted to announce that Registration for the Congress is now open.